Some days it doesn’t pay to get out of bed. I am vigilant about hand washing and covering my mouth and nose. I have even donned the “masked” look while in public. I try really hard NOT to get anything out there. Why? Because I am immunosuppressed and more prone to getting everything out there if I am not careful.
So much for planning and being careful. I woke up yesterday feeling totally horrible, with congestion and fever and chills and aching all over. If you add diarrhea to the mix you can see the misery. Some of these symptoms I have most days, but the fever and chills anad congestion are new and painful. My ears are involved too so my balance is off. Yup, just what I did not need!
So now instead of feeling just lupie, I am also fighting this flu thing. So, I have been in bed with a bug and feeling puny. Thank goodness I have my husband. He literally waited on me and took care of me. What a sweetie he is! He made me food to eat and I mean, he did it all!
I am feeling much improved today but still resting so I don’t get back to sicker again. You see, most people can push through illness and go on. For a lupus patient, we have to rest, really rest,so our bodies can heal. If we try to puch through it, we will pay a heavy price in getting even sicker than we started out. So now I feel better, but am resting in bed so I can heal better and be able to do more in a day or so.
A word to the wise here is this: Do not ask a lupus patient why she/he is in bed. We would much rather be out of bed, believe me. It is not a choice, nor is it a fatigue that is like you have. It is an overwhelming tiredness that permeates every part of our body and can be painful even. Some have called it toxic fatigue. It is not an excuse to lay in bed. It is a neccessity. Next time you think, “Oh there she is in bed again”., think again. We would love to be like you and able to jump out of bed and rush into a new day… we just can’t. Ok? Nuff said!