Hello everyone! I sincerely hope that you have all had a great week! Our weather here in Ohio has been beautiful! Sadly, I did not get to enjoy it.
I had to prep for a colonoscopy which meant that I was tied to the toilet for the weekend. Yay me! I am glad that I had it though. It was on Monday morning I had it. I knew something was different when I woke up and discovered it took a lot longer than normal. I was also hurting a little. I have had lots of these since 2001 so I know the drill.
Anyway, I found that they had removed three small 2 mm polyps and one big 3 cm polyp. That big one was the worry. They have all been sent for biopsy and I find the results on Monday. Ok, whew!! Made it!!
Then, on Monday evening I began to hurt in the region of the big polyp removal. I went to sleep eventually but woke with more pain. I kept pretending to myself ( something I am quite good at) that it would go away. Instead, it got worse until finally I called the doctor at 4:30 pm. He told me to go to the ER and have a ct scan. Easy enough, right? Wrong!
I got there at 5:30 pm (driving myself, don’t ask). After triage and IV port in, bloodwork was sent off and they finally got a room for me. I went back and got dressed in hospital garb and waited. I saw the doctor around 8 pm and he ordered morphine for pain and zofran for nausea. Now I was scrambling texting trying to find a ride for later when I left. Remember, I drove myself ( again, don’t ask).
Finally I got my ct scan. The doctor returned and said my lymph nodes were inflamed around the area the polyp was removed. Great! The good news was my colon wasn’t perforated!! Ok, lymph nodes, sounds like lupus is acting up to me but what do I know?
I was then told I was being admitted. What!? Oh just great! So, now I am texting saying I am not needing a ride after all. Around 1 am I am taken to a room and after another hour of admission process I am finally able to rest a little bit. I slept for an hour before the lab came for blood again. Next was the tech for vitals. The nurse was next with meds. So, no sleep.
I must have seen seven different doctors on Wednesday morning. Finally one came in and said I had “alongmedicalnameicantrecall” syndrome that a few people get after a colonoscopy. Figures. This was the first time I ever had anything like this!
I was told if I could eat lunch, I could go home. Yippee!!! Well, after lunch, another doctor came in and said I would stay one more night just to be safe. Oh no!!! After she consulted with the other doctor, it was decided it was up to me! I dressed quickly and asked for my paperwork. Ah! The sweet smell of success!! I was breaking out!! Then, oops!!!!
They asked how I was getting home. Thankfully I had not had pain meds that day so I told them I was driving myself. It almost was an issue but in the end, they walked me all the way to my car and I was out of there!!!
I stopped and got my meds on the way home them got home. Took my meds and sat in my recliner with the intent of watching a few shows that were on the dvr. The joke was on me! Once I sat back my kitty jumped into my lap and I woke up at 8 this morning! Now, that’s not so bad but I went into the bedroom and promptly fell back to sleep. I finally woke up at 3 pm! I guess I was sleepy!!!
So, I must apologize for being MIA but it wasn’t intended. To beat it all, the weather today is cold rain!! All those beautiful days and I was out. Crap. Oh well, at least I am home now!
Please dear friends I would like to ask for prayers that my biopsy comes back ok. I am a little worried. I am not going to obsess but it is there until they give the all clear.
Hopefully I will steer clear of hospitals for a long time now. Well, one can hope anyway! Hope you are all enjoying spring wherever you live! ~Jen
Call me ms van winkle
written on Nov. 7 th, 2012
Ok. I admit it. I have slept for about 38 hours. I missed the whole Election Day dramas. I do not even know who won. I will find out but wow!! You see, my cable was stopped so I have no tv, phone or Internet right now. It’s not looking good for the future either. I think I was overly optimistic about how far I could stretch a buck. Oh well, this will be ok. I could make this into a no tv thing for a year and blog about it. Yeah, now I have a plan!! He he he.
So I will be writing my blog on my phone and whenever I am in a wifi zone, I will upload it. No worries, the blog will go on!!
I am motivated to get this place in shape for winter. I have moved furniture and such but finally have a plan in mind that I think will work. I just need to attack this plan one thing at a time. Overdoing it causes days of sleep, as shown by the last day and a half! All I did was walk to the library to use their wifi. Ok, so it is 3/4 mile round trip. I get it. Lupus wasn’t happy. Well pooh on you lupus! I will continue to live my life no matter what you do!! I needed to sleep anyway. Lol.
Seriously though, I will miss my few shows I watched. I always dvr’d shows and when I had a chance I would watch them. There are only a few I really enjoyed. I can deal with it. Plus, I can focus on more spiritual things too!! This gives me more time for studying the bible and adjusting my life to be a better Christian! See, focus on positives!!
So, in this hiatus from electronic gadgets, I will still be posting. Just please bear with me as I try to adjust and remain focused on the positives of my life!! Thanks!!
RE: Sleep Patterns
Dear Mr. Sandman,
Look, I understand that you cannot be there for me all the time, but some of the time would be super! I mean, you go away for a few days then Wham! you come back for a few days. This can make our relationship very rocky in my opinion.
I just wish you could come on a regular schedule, like every night, so I can get a routine going. I mean, I think our relationship is going along well and then you surprise me by not coming back one night. Then, because I am sooo tired, I cannot sleep. These surprises are not good for us.
After your absence, you then proceed to overstay your welcome and basically I cannot get out of bed. I get up and try but you pull me back. This is not a healthy relationship at all.
Please do me and you a favor. Could you please just get more regular? I know the wolf throws you out at times, but you can fight him if you want to. Please consider changing, for us, our relationship and the family. I appreciate your consideration of this matter.
Fatigue is defined as the following:
[fuh-teeg] Show IPA noun, adjective, verb,-tigued, -ti·guing.
Today had an auspicious start for me. If you have lupus you will understand this. I could not get out of bed. I made it to the bathroom and barely made it back to bed. Sounds ridiculous? It is my reality some days and this was one of them. I ended up sleeping until noon. I made myself get up and into my chair before my granddaughter got here. I don’t want the grandkids to worry about their meemaw so I pasted on my smiling face and pretended I was fine. After she left, I basically collapsed into my chair and have been here ever since. Yes, I get up to do some things but I tell you, this fatigue is for the birds. Have you ever been walking in sand and find you struggle with energy? Imagine that you are on a beautiful beach and in order to walk, you have to sink in a few inches into the sand and then you can walk. Well, that would be easy compared to how I feel today.
I knew I might have the rebound effect from the busy week I had last week. I know the signs, I had them all, and yet I push it out of my mind thinking that this time it will not happen. WRONG. It has happened and while I can pretend for a short time, the reality is that we did not get to the camper tonight (as planned) and instead we are home and while hubs sleeps, I am awake, in part due to the sleeping earlier in the day and in part due to the pain and other associated issues that come when I over do it.
So, this is my venting for today. I know there are those who think I should not discuss the incidentals of my life and how the disease affects me. However, I find it helps me to pour it out on here and then I can relax more and go about the business of life. If that offends some people, then you do not have to read it. For me, it releases the stress and brings a sort of peace. For that, I am grateful.
- What to Expect From Life With Systemic Lupus (everydayhealth.com)
Today’s forecast calls for freeze warning overnight and colder air during the day. This forecast means one thing for me…painful joints. Ugh. The pain was present before I got out of bed this morning. I thought, well, it will get better. Most days it does. I am almost always stiff in the morning.
Today was not one of those days where I feel better. I got up and the pain has stayed with me. So now what? Pain meds and a nap. The combination usually makes me feel better and that is my hope. I will update how it goes.
Listening to my body is something I do but not always well. I try to, I really do. Some days I do better than others. I am hoping that today is that, better than others and that I will feel better soon. So, I am off to my nap. It is my sincere hope that I will feel better afterwards.
Hi all… today was a busy day as the title shows. I had my littlest grand for the morning then for the afternoon as well. We went to dinner with our family and friends who are in for the district convention this weekend. Ours was last weekend. We had so much fun and I took tons of pics. It is so nice to get to visit with family.
My sil and bil and their family had never seen the newest grand so it was really special to them to get to see the baby and meet her and get to know her. She went right to my sil’s waiting arms! The baby did really well at the restaurant too.
As for lupus, well, today it has been working really ahrd to overwhelm me. I perservered and I feel the price iwll have to be paid tomorrow for the spoons I “borrowed” from tomorrow to use today. If you do not know what I am talking about, please go the wesite www.butyoudontlooksick.com and read the spoon theory.
So, I am sitting here tonight, thankful for the family, the fellowship, and the fun times we had. The food was not bad either. Tomorrow they will attend the convention again, and I will probably sleep and rest. Maybe, maybe not.
Tomorrow evening, hubs and I are going to the class reunion of all classes of Franklin High School. It is being held at JD Legends, a bowling alley/sand volleyball/ venue for country music stars. A classmate of mine came up with the idea to have it once a year at the bowling alley and invite all classes! Last year was a success so this year may be better. I did not attend last year but this will be fun. I am on assignment from another classmate who cannot attend, and my assignment is to take pics and send them to her. She lives too far away to get here so it is the next best thing.
I am an alumni of the class of ’78 and hubs is an alumni of the class of ’84. See, I was a trendsetter before there was a name for it. I am a cougar…lol. Not really, but it is funny that a friend of mine who went to school with me married a friend of hubs who went to school with him. We have lots in common needless to say!
Better head off to the old bed, I hear it calling my name! I will write again soon! Hope everyone has a pain free day and as many spoons as you need for tomorrow!