Once Again

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Ok, I know I try to keep it real on here and so you are being warned of another rant coming up.

I have a facebook page like most people these days. I post little bits on how I feel and Bible verses and such to try to be positive. Some days it is not worth trying to be positive. Let me explain.

Three days ago I woke up with blisters on my upper and lower gums, which is fairly common among lupus folks. I went to my facebook page and wrote I had a rough night and woke up with these blisters on my gums. Ok, so what is the problem then?

I had two people, close to me, who said I should not post that and they even acted like I was stupid for sharing this information. Yes, it happened again. Well, after much consideration, I have decided not to put new statuses on my facebook page anymore. I will only say cliche things like “Have a great day” from here on out.

I am sick and tired of judgmental people who live to put others down by their words and actions. I do not need it in my life. Before you say I can delete them, be aware that I cannot, because they are family. The fact they are family only makes it hurt more that they would lash out at me for something I thought nothing about posting.  I have never tried to be anything but honest when I post. Funny thing is, I had a bunch of likes on the post because I have many other folks who deal with autoimmune things as well and they understand because they live with it too.

Am I copping out by not posting any more “real” statuses? Probably. I realize these folks truly just put others down to try to lift themselves up but I am not going to play the game anymore. By not participating, it eliminates their ability to critique every word or thing I say or write.

Why cannot people just leave others alone? Ridiculing sick people must be a worldwide game to many folks. It is a shame that after all these years of advocating and sharing to help others, I feel compelled to basically shut down my page.

If I try to tell them that is hurt my feelings you know what I would get? More ridicule. Blame. Shame. It is the way they do things. They truly do not care how many people they hurt because they are perfect and so they see no wrong. Yes, I have tried frequently to work this out.Not going to happen. So, I will bow out for awhile and leave my page alone for now. I was not on there much anyway.

Thank you for listening/reading. Do you have folks who do this to you too?

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Bone Broth Basics

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I got this information from Google and a series of different web pages and blogs. I will reference them below this article for you to check out yourself if you like.
What are the benefits of bone broth protein?
Bone broth is one of the beneficial foods to eat/drink to restore gut health and also support immune system function and healthy inflammation response. Collagen/gelatin and the amino acids proline, glutamine and arginine help seal these openings in the gut lining and support gut integrity. It also has glucosamine. 
What vitamins are in bone broth?
A study on the necessary nutrients for bone health found that the process of bone-formation requires “an adequate and constant supply of nutrients” as follows:calciumproteinmagnesium, phosphorusvitamin Dpotassiumzincmanganese, copper, boroniron, vitamin A, vitamin Kvitamin C, and the B vitamins.
Is bone broth a complete protein?
Broth is not a complete protein, since it only contains three amino acids. A complete protein needs to contain all B essential amino acids. Therefore it is not a meat replacement, but it can be used as a meat extender. Since glycine is used to make other amino acids, it is considered protein sparing.May 23, 2012
What nutrients are in bone broth?
Benefits of Bone Broth: Minerals. Aside from the benefits of all the proteins and sugars, and whatever nutrients might be hiding in the marrow, bone broth is extremely high in minerals. Bones from land animals are rich in calcium,magnesiumpotassium, and phosphorus, and fish bones also contain iodine.
What type of bones are used for bone broth?
There are two types of bones you can use when making homemade bone broth:jointy bones and meaty bones. And before you say anything else, YES. Those are their scientific names! Jointy bones are cartilage-rich bones and connective tissuesthat contain joints — chicken feet, wings, and neckscow knuckles and ox tails.
How do you make your own bone broth?
Instructions
  1. Place bones in your stock pot.
  2. Add onion, carrots, celery, salt and peppercorns.
  3. Pour enough water in the pot to cover everything.
  4. Add vinegar and let stand for 30-40 minutes.
  5. Bring to a boil and then reduce to a low simmer for the recommended amount of time:
  6. Chicken bones: 8-24 hours.
  7. Beef bones: 8-72 hours.
References:

Bone Broth: Nutritional Facts & Benefits

divinehealthfromtheinsideout.com/2012/05/bone-broth-nutritional-facts-benefits/

Pain in Arm Pits?

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As lupus patients, we experience swelling of our lymph nodes at times. It usually is right before a flare begins or during a flare. One of the places we have this happen is in our arm pits.

Why in the arm pits? We have lymph nodes there and when they get swollen, you can experience pain and visible swelling which can hurt as you move your arms. Which begs the question, why do the lymph nodes swell up? I looked into this and found the following information online. I will put the references below the information. I hope it helps someone out there.

From web md: What are the lymph nodes?

WebMD

Lymph Nodes

Lymph nodes are part of the lymph system, which carries lymph fluid, nutrients, and waste material between the body tissues and the bloodstream. The lymph system is also an important part of the immune system, the body’s defense system against disease.

The lymph nodes (sometimes called lymph glands) filter lymph fluid as it flows through them, trapping bacteria, viruses, and other foreign substances, which are then destroyed by special white blood cells called lymphocytes. Lymph nodes may be found singly or in groups; they may be as small as the head of a pin or as large as an olive. Groups of lymph nodes can be felt in the neck, groin, and underarms. Many lymph nodes in the body can’t be felt.

When there is a problem in the body, the nearby lymph nodes may become swollen. For example, if a person has a throat infection, the lymph nodes in the neck may swell and become tender.

Cancer can spread through the lymph system.

Bone Broth, The New Cure?

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As most of you know, I like to research and find alternative treatments for lupus that line up with my “food is medicine” and “natural versus medications” philosophy. I am off all but two of my medications now and using natural alternatives for treating my lupus (with my doctor’s knowledge and support). So in line with my philosophy, and after cross referencing this subject of bone broth, I feel inclined to put this out there for others to explore as well.

I am an avid canner. I can most of my garden foods meats, and make my own bread and jellies. Yes, I do all of this and have lupus. As this garden season winded down, one of my canning groups I belong to started showing pictures of this bone broth stuff. I got curious. What is this stuff and why can it? Funny, I heard about this remarkable thing from my canning groups and not my doctor, but I digress.

I researched bone broth online and watched many you tube videos about this as well. Imagine, if you will, my amazement when I found that lupus is mentioned as something that can be helped with this broth. All autoimmune diseases actually can be helped with this substance. I did not see one bad thing about this stuff.

I know that many of us realize that broth itself is good for colds and flu. Good old chicken and beef broth are the home recipe for many who get colds and flu. My granny used to make chicken soup when we were sick. I make it now when I am sick. For generations this broth, made from stock, is what was used. There must be a reason why.

There is a difference between regular beef or chicken broth and bone broth. You can purchase most regular broths in the supermarket, although making it yourself reduces the additives involved and is better for you. Bone broth is available as well, but is much better for you if you make it yourself.

Let us start with the basics: What is bone broth? Bone broth is the broth created when you cook the bones or carcass of beef, chicken, turkey and and fish even.  You put your turkey bones, for example, in a big soup stock pot, cover with one and a half gallons of filtered water. Filtered water is any water you purchase that has been filtered free of additives. Do not use your tap water. You can add seasonings if you like at this point, such as garlic or celery or any other things you want in your broth. Root veggies are great. You will need to add about 1/4 cup of apple cider vinegar to help the bones release their precious things into the broth. You will not taste it in the final product. Once you have all things in the pot, simmer on low for one to two days. Yes, days.

Once it is done, you will strain it through cheese cloth or muslin to remove all things except the broth. Your broth should be clear. Next, you can can the broth in canning jars in your pressure canner or pour into ice cube trays and freeze. You can use this broth in any recipe calling for broth. You can also drink this warm. It will become gelatinous as it cools. You can freeze the carcass until you are ready to make your broth too.

This is just a brief tutorial on making it. With many cooking turkeys this week, this is the perfect time to post this so you can benefit from the bone broth. I will post on the benefits for drinking it or using it in the next post. Trust me, I am amazed! Stay tuned for the hows and whys as to how it helps those of us with lupus.

Life Expectancy With Lupus

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Wow! What a title! It is kind of scary to put such a title on a post. It makes you stop for a moment. Why have this topic at all?

When I was first diagnosed with systemic lupus erythrematosis, way back in the late 1980’s, the prognosis and life expectancy was ten years. Ten years! I was so scared. As time went on, and medications for other illnesses were being used successfully for lupus, the life expectancy changed.

Today, unless a severe event arises, you can expect to live a pretty average life in a normal amount of years. Normal is not a good choice of word but as normal as you can live with a disease like lupus.

I am here, after 25+ years and still kicking. Has it been easy? No. Has it been pain free? No. Has it been a roller coaster? Yes. Is it worth all I have been through? Yes.

Life is a gift. It is truly how you look at it. I have had days where I wondered why I keep going. Many days actually. Some days my perspective is clouded with pain, depression and despair. It is hardest on those days to see the good in life. You MUST though!

I want to challenge each of you to try this simple exercise for 30 days. I want you to get a piece of paper. For 30 days I want you to write something, just one thing or more if you want, that you are blessed with. For example, today I feel blessed because I woke up! It doesn’t have to be profound. It can be as simple as being blessed having a cup of delicious coffee to enjoy. A smile, a friendly phone call, anything! Make this a daily thing for 30 days.

I can say this, if you do this, you will start feeling more hopeful and positive. It becomes a habit, a good one, and can radically change your outlook.

When you are first diagnosed, life can be scary. Yes, you have lupus. Yes, your lupus is unique for you. However, it truly helps when you learn more about lupus and can share with others. I started this blog for that purpose. I was feeling very alone and isolated. No one understood how I felt. I was ridiculed, called lazy, ostracized by family. I was made to feel I was crazy. Yes, crazy, it was all in my head. Many of you feel this way or felt it too.

If you can focus on learning all you can about your journey, your lupus, and being diagnosed, you gain power over the negatives. Knowledge is power! I thought I had no more than ten years to live if I was lucky. However, as time went on, medicine improved the outlook and here I am today, fat and sassy and still hanging on!

It truly helped me by focusing on positives and living the best life I can live. Try the daily blessing exercise. Just try it and see how it helps! Hang in there! Think of how far things have come just in the last few years. Journey on my friends, and I hope your days are as pain free as they can be.

New Food Find

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I am always looking for new foods so when I find something I love, I always share! What am I talking about you say. While shopping for groceries, I went into the cookie aisle. I found something absolutely amazing.

I found, next to the vanilla wafers, something called lemon wafers! Wow! They are SO good! I loved them plain but started thinking of other uses.

These would be good crushed and made into a lemon pie crust! Another idea is in a trifle, layered with pudding and whipped cream. Or the best idea for me is using it as crust for lemon lush. Yum!

So, I just had to write about this. Even my husband loves them, which is no easy feat. I am going to have to buy more, since we devoured the whole box!

It is Fall, Y’All

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Our weather went from 80 degrees in the afternoon to 40 degrees overnight as the cold front moved through. We have had lows but it snapped back to the 80’s again. Indian summer. We knew it had to end at some point and we finally reached that point.

Sunday, we went for a ride down to the Red River Gorge area to see the fall peak colors. It was glorious! Sunday night is when the change took place. Rain, hard rain, and winds took most of the leaves off most of the trees. I am so glad we saw them just before.

So Happy Fall Everyone!!!!

Enjoy the cooler days and nights, campfires, chili, and the jackets to stay warm. I love this time of year!