This problem or fog is something many of us have had to learn to live with. We all have different ways to cope. I personally keep all my appointments in my blackberry and if it is not in there, it doesn’t get done. I need to start making lists too, since I start one thing and then divert to another, then another until I forget what I originally was doing. It can be very frustrating knowing something is “in there” but you cannot access it. Your family and friends may think you are wierd, but this is a legitimate manifestation of those who suffer from lupus. This article is well written and helps explain more about it. Enjoy!
This information was obtained from www.lupus.org.
Memory Loss and “Lupus Fog”
The term “lupus fog” is almost universally known to people with lupus. The phrase reflects the difficulty that you may have in completing once-familiar tasks, such as remembering names and dates, keeping appointments, balancing your checkbook, or processing your thoughts. Properly termed “cognitive dysfunction” or “cognitive impairment,” this inability to recall information can be extremely frustrating. These symptoms may come and go, but may also be continuous, making school or work difficult or even impossible in extreme cases. People with both lupus and fibromyalgia are even more likely to experience cognitive problems.
If you are experiencing these signs of confusion and memory loss, you may benefit from the skills of a cognitive therapist, either a psychologist or speech-language pathologist. These professionals can help you develop coping techniques and strategies to improve concentration and overcome these difficulties. These techniques may include puzzles, games, biofeedback, using a daily appointment calendar, balancing activities to avoid stress, etc. Cognitive therapists can also explain how to use memory aids and decrease distractions.
These tips may help ease the frustrations of cognitive impairment caused by lupus.
- Pay attention when receiving new information. Repeat it or write it down. Verify any details.
- Focus on one task at a time.
- Take good care of your body; exercise, eat well, and get enough sleep.
- Learn memory techniques, such as associating a person’s name with an image, or repeating the name several times in conversation.
- Try to stay organized. One helpful hint is to use a year-long calendar notebook so that all appointments, plans, contact information, and reminders can be kept in one place.