Fall and Spring are two of my favorite times of year. The weather is in the optimum range during the day with a nip of chill at night. In Fall, the leaves are changing into brilliant colors that capture images in my mind. In Spring, the new leaves and stirrings of life after winter give me hope. It is a cycle. I am fortunate enough to live in a place that has four seasons (most of the time).
While I love this time of year, it does not love me. You see, with lupus and fibro and on and on, the weather changes actually can create problems int he form of pain and swelling and such. Add to that the pressures of the barometer and well, you can see it is not especially a comfortable time for those of us with lupus.
So I have been under the weather, so to speak, for a bit now. I have had pneumonia and a particularly bad flare. I am still recovering from them. I find I will be wide awake one minute then sound asleep a second later only to wake up and find that I have slept for a few hours. In other words, my body has taken over. If you are a lupie, you may have experienced this phenomenon as well. It is called “toxic fatigue”.
To help you picture how it feels to one who has it, think about how you feel as you wake up. Most feel refreshed, and ready to face the day ahead of them. If you have toxic fatigue, you literally are aware of being semi-awake but find it terribly hard to pull out of the fog that has you surrounded and is calling you back to sleep. You literally fight to wake up and get started on your day. Sounds kinda scary doesn’t it? Yet, that is how I have been for a few weeks now. It is indeed scary. I mean, what if I cannot wake up? I live alone so only my cat would know it. Is that maudlin thinking? Yes it is, but oh so true as well.
Have any of you experienced this toxic fatigue? How would you describe it? Please share your experiences! Thanks for reading!
- Lupus fatigue and catching a cat… nap (lupusadventurebetweenthelines.wordpress.com)