Baby It’s Cold Outside


We have had an extended warm period until a few days ago. Enter winter. You know, that wonderful time of the year when my joints hurt, I make sounds getting up and down, wearing multiple layers to try to stay warm, debating how crucial it is if I do not get outside. THAT time of year.

I was lulled into a false sense of winter being postponed this year. I know, I know better but it was 81 just a few days ago. A girl can dream, right?

Anyway, I must confess that my new regimen of supplements and oils and eating better is showing promise, especially this time of year with the colder temperatures. I usually am so bad in pain that I barely make to out of bed into my chair. I become almost housebound, and the pain is truly horrible. That is how the past years have been for me.

Fast forward to now… I am truly amazed at how good I feel, considering I am in pain still but it is not unbearable. I actually FEEL the pain more but it is not intolerable and I am functioning pretty good. I am shocked. I mean, I knew this time of year would test all my improvements to the limit but I am pleasantly surprised at how it really IS working better than I thought.

The pain I feel is there, but not making me unable to do things. This week, for example, I canned six jars of candy apple jelly, five jars of apple butter, plus did eight jars of beef stew too. If you add in the dehydrating oranges and bananas and apples as well, then you can see I have been busy. I also had to help my mother in law by getting her groceries for her, and run getting our own things too. I moved my pantry shelves into a new room and am in the process of getting more organized. Any one of these things would not have been possible last year. Seriously.

I am amazed. I will keep on doing these changes and see how I fare as winter develops. We are having snow tomorrow and the next day. Not a lot of accumulation but snow nonetheless. Fun times. So, I will be honest about how I am feeling as this season progresses.

I hope you are all feeling well!


Weather Woes


It’s that wonderful time of year here in Ohio, the leaves are changing colors, the days are getting shorter, the air is crisper, high school football is in full swing and I hurt.

Every year at this time I think about moving south. Why? The weather changes hurt me. Spring and fall the most. Wild weather fluctuations accompanied with big fronts and rain are the worst. In Ohio, we have these in spring and fall. Lucky me. This fall is no different. I want to be out enjoying all the beauty that fall brings but the pain keeps me from doing as much as I would like to. The solution? I would love to move to a warmer climate.

I lived in Georgia several times and despite the mountains and cooler temperatures, my lupus didn’t hurt as bad there. I’m not sure why. I think it is because the weather there, while it does change, is not as unpredictable as here in the Ohio valley, or as we call it sinus valley. Yes it rains down there, but for reasons unknown to me, I just didn’t hurt as bad as up here.

Does that mean I would move back? If I could. My choices of where to live the remainder of my life are (in no particular order) Arizona, Texas, Kentucky, Georgia, and Tennessee. Kentucky is my favorite because my familial roots are there. I know the weather isn’t much different from Ohio but my heart wants to live there. All the others are gorgeous in their own right and I would not hurt as bad. It’s mostly a dream though because my finances say I cannot afford to not only move, but live elsewhere.

Does the weather affect you all? What hurts you the worst? Hope today is a pain free day or as pain free as it can be. I leave you with a picture of me in the backyard enjoying the hammock on a warm autumn day.


Hot and Cold


Well, autumn is here again and this begins the seasonal joys of pain. Why? Well for example, this week in Ohio it is going from 90-100 degree temperatures all week to Fridays high temperature being only 65. Now, this is a welcome break from the heat but when the temperatures fluctuate so wildly like that, those of us with autoimmune issues seem to feel pain and headaches from it. Also, asthma flares for me too.

So, how does the weather affect you?

Question: Does a person with lupus get sicker when a common cold arises


Yes, the patient with Lupus can get sicker with commom cold.Adenovirus has an adverse effect on the respiratory diseases. If you get infected with both the germs your condition will indeed get worse.

This question is from the website I am sharing it for those of us who have this cold/flu going on. Of course, please consult your heathcare provider because they are the ones familiar with you and your disease process. I am not a doctor, so please use this as informational only.