Weather Woes

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It’s that wonderful time of year here in Ohio, the leaves are changing colors, the days are getting shorter, the air is crisper, high school football is in full swing and I hurt.

Every year at this time I think about moving south. Why? The weather changes hurt me. Spring and fall the most. Wild weather fluctuations accompanied with big fronts and rain are the worst. In Ohio, we have these in spring and fall. Lucky me. This fall is no different. I want to be out enjoying all the beauty that fall brings but the pain keeps me from doing as much as I would like to. The solution? I would love to move to a warmer climate.

I lived in Georgia several times and despite the mountains and cooler temperatures, my lupus didn’t hurt as bad there. I’m not sure why. I think it is because the weather there, while it does change, is not as unpredictable as here in the Ohio valley, or as we call it sinus valley. Yes it rains down there, but for reasons unknown to me, I just didn’t hurt as bad as up here.

Does that mean I would move back? If I could. My choices of where to live the remainder of my life are (in no particular order) Arizona, Texas, Kentucky, Georgia, and Tennessee. Kentucky is my favorite because my familial roots are there. I know the weather isn’t much different from Ohio but my heart wants to live there. All the others are gorgeous in their own right and I would not hurt as bad. It’s mostly a dream though because my finances say I cannot afford to not only move, but live elsewhere.

Does the weather affect you all? What hurts you the worst? Hope today is a pain free day or as pain free as it can be. I leave you with a picture of me in the backyard enjoying the hammock on a warm autumn day.

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More, Again? Really?

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This post is yet another in the long lost of things that have gone wrong for me lately. I am telling this because I am wanting others who are “normal” to understand how a simple thing like a cold can become something even more menacing when you have an autoimmune disease.

It started out innocent enough, just a cold.  I don’t know where I got it, but I got it and it wasn’t that bad, at first that is.  My husband got it and so did my mother-in-law (who lives with us). This is where the similarities end.

I began to have a fever and chills, sore throat, body aches, ear aches, headaches, swollen lymph nodes in my neck and under my arms, a non-productive cough, tons of sneezing, my face began to look like a malar rash was coming in, and my face was swollen from the sinuses being so full, and a tightness in my chest. I could not eat, felt worse than I normally do, and was basically laying around.

This happened over the weekend so I did not call the doctor, but I tried home remedies that I have used over the years to help me muddle through it. I made honey and lemon tea (I wish I could have gotten some good whiskey but it was not happening), I kept hot or cold packs on my head and face (depending on whether I was hot or cold I used the opposite), I used my neti pot more frequently, I made sure to keep hydrated, and I used my nebulizer for the dry cough.

A couple of days into this and I felt better and thought the worst was over. WRONG! I had a brief reprieve for a day then back into the abyss again. This was on Monday so I broke down and called my rheumy. He ordered me prednisone to help me get on track quicker and prevent the flare I am in from getting worse and to keep me from pleurisy (which I can get easily with these things happening). I then talked to my family doc who ordered me some antibiotics.

It has been two days since them and I think the corner is getting turned. I got out into the cold and snow to go to the store with my hubs. It was hard to do since I am still hurting, but I did it. I am not patting myself on the back, just stating a fact.

On to the next thing… can you believe that there are people out there who actually think I was being a BABY about a mere cold??? That is why I posted the posts about lupus and the flu in an attempt to educate so others will not open their mouths and insert their feet. I mean, come on, if I can live in pain for most days, why should I gripe about a mere cold? If it is overriding the pain I normally feel, then listen up! I am in PAIN and I AM SICK! My lungs get weak quick ( I have asthma) when I get these bugs and it is not something I can buck up and get over!

It really burns me that there are people out there who think I am being a baby. I say, if you have not walked in my shoes, then tread lightly and do not impose your limited medical knowledge on me.  Believe me, if I could, I would “get over it”. I would love to walk in your shoes and have the energy to get all I want done. I would love to be able to have a mere cold and not be any sicker. I would love to not lay in a recliner or bed on the days when I am the most sick. I would love to work again!

The truth is that I cannot do a lot of these things anymore and if you need to put me down with your snide remarks and innuendo to make yourself feel better about yourself, then take a long walk off a short pier please and leave me alone. I cherish the real friends I have around me and I do not need anyone who has to be mean to others to elevate their own stature (at least in their mind). It is petty, small minded and just plain ugly to treat others with so much disdain that you belittle their illness and them and then can go off and laugh later thinking you were so clever.

I hate to break it to you but the truth is, you really make a fool of yourself because others can see through you and actually feel pity for you, because you cannot or will not ever understand the feeling of empathy. I feel sorry for you too.

In the meantime, I will deal with each bump along the way and I am so thankful that I am here for today! Little things are big things to me! I am blessed int hat I have dear friends who genuinely love me,and I do not need the pettiness.

I think when I am sick these things hurt me more than when I am feeling better. I apologize for the negativity. Sometimes, I just have to get it out or I will explode.

I hope everyone is safe and warm and dry out there! Thanks for letting me vent!

Question: Does a person with lupus get sicker when a common cold arises

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Yes, the patient with Lupus can get sicker with commom cold.Adenovirus has an adverse effect on the respiratory diseases. If you get infected with both the germs your condition will indeed get worse.

This question is from the website http://www.stomachflusymptoms.net. I am sharing it for those of us who have this cold/flu going on. Of course, please consult your heathcare provider because they are the ones familiar with you and your disease process. I am not a doctor, so please use this as informational only.

Wow!

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The title says it all! It has been one of those weeks. You know the kind, where things are either up or down and nothing in between. It has been a week of hills and valleys. On the positive side, I got to see most of my grands this last weekend and spend time with them. Time well spent indeed.

On the negative side, the flare is ongoing and added to that was a particularly nasty flu bug. My granddaughter had it first, gave it to her parents and then I got it. So, this last week was a blur of love, fun and then vomiting and diarrhea. Wow! I am ready for some middle ground this week.